I've Had Better Weekends
The headaches are becoming unmanagable. I can't tell if they're anxiety, or if they are related to the tumor. I'm sneaking off to bed more and more, sleepy all the time, in pain most of it. I manage one workout, and give sex another go round, with the same painful, disappointing results. I find myself afraid to do normal things, like run, or bend over, or stand up quickly, less because of how it will affect me physically than because of what it will do to my state of mind should I experience pain. I am existing in limbo, unable to focus on any future event, to make any decisions, until I "know."
Today is not a good day.
posted by HeadCase @ 9:26 AM
5 Comments:
Coupla things. One, you are lucky the MRI wasn't bad. I had one that didn't bother me at all, but the second when I was sick and my defenses were down, and it remains one of the most awful experiences I've had, since I spent the entire time fighting a panic attack. Hideous.
Two, once you've found out for sure this is nothing - and I firmly believe this is the case - try acupunture. I went through what you are going through, only mine were a mix of migraines and tension headaches. They were almost daily and unrelenting. I tried more drugs than I can list, (most with awful side effects) biofeedback, a shrink, etc. After 2 years, I decided to give acupunture a try after a doctor I went to suggested it. I had three treatments in one week and the headaches went down to every few days. A second week and they lowered themselves to occasionally. I then went to once a month for about a year and now I get occasional headaches and that is it. It was remarkable.
Hi ya...
Cousin Ramona here - that is Rosanne's cousin. I am a 31 year old female who is almost a 3 year survivor of a crainotomy for a malignant brain tumor.
If I may give some advice - try not to get your information from the Internet, *GASP* I know! :) However, most of the information that is written is based on 'worst case scenerios';certainly not tailored to your specific *hopeful* situation. The things that I read before my surgery made me borderline neurotic! The blogs and listserves that I found at this time were dismal and depressing - full of self loathing and lack of hope. I found comfort and control in telling, anyone who would listen, my situation and feelings.
During this uncertain time, I tried to only focus on things that were "fun". For example - my husband and I would go to an arcade and play videogames and DDR, another day we would go for Chineese food and the object would be to finish your food, but you could only use chopstix. And comedy - I rented or saw every comedy that I could! My favorite was "The Birdcage" and another one that was recommended to me was "Nothing to loose"; also any Steve Martin or Robin Williams or *insert your favorite funny person here* film.
Basically, think:
What makes you happy...?
What keeps you positive...?
What makes you feel like you are in control of your diagnosis?
What helps you to see a favorable prospect for your future?
Most importantly... WHAT MAKES YOU LAUGH????
Once you figure it out, don't delay! DO IT!
In whatever you do each day try to find the humor around you! I have some great, funny memories from my difficult situation! :)
If you to want talk with someone who's been through this, email Rosanne for my email and/or phone #!
You are in my good thoughts and prayers.
-rrs
p.s I have a great, believe it or not, scientific artile on the reduction of brain tumors through playing ping pong!
I agree with what the other people have said (especially about not getting your info from the internet). Don't borrow trouble, as the old saying goes.
You are in my thoughts and prayers. I REALLY do think you'll be okay.
HI: Please check out meningiomamommas.org. Women who have been through it. Some waiting. Great answers to all your questions.
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